Down Syndrome Registry to Collect Medical Data

DENVER — The first national Down syndrome patient registry to be housed at the Eunice Kennedy Shriver National Institute of Child Health and Human Development was spearheaded by the Global Down Syndrome Foundation with support from many organizations, including those on the National Institutes of Health (NIH) Down Syndrome Consortium.
The national registry will collect much needed medical information from people with Down syndrome, and connect people with Down syndrome and their families with scientists engaging in research that is of interest to those people and their families. The registry will be used to identify critical health trends, the most effective treatments and clinical trials for potential therapies.

Read more here: http://www.heraldonline.com/2012/10/26/4368630/national-institutes-of-health.html#storylink=cpy