Giselle Fernandez and her mother. |
Giselle Fernandez is only 17 but she has had more than 50 operations
since she was born with a rare genetic condition. She regularly sees a
host of pediatric specialists, including an ophthalmologist, an
endocrinologist and a neurologist at UCLA
Health System. Her care has cost hundreds of thousands of dollars so
far, and she will need special treatment for the rest of her life.
While UCLA Health System has long prided itself on being at the
forefront of treating patients like Giselle, it is now trying to lower
sharply the cost of providing that care. By enrolling young patients with complex and expensive diseases in a program called a medical home, the system tries to ensure that doctors spend more time with patients and work more closely with parents to coordinate care. The program has
cut emergency room visits by slightly more than half.
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