In 2010 The Arc conducted a national internet survey to capture the perspectives of people with intellectual and or developmental disabilities (I/DD) and their family caregivers. Much of the data supports The Arc’s Don’t Cut Our Lifeline campaign.
The Family and Individual Needs for Disability Supports (FINDS) survey focused on issues including educational, housing, employment and support needs of people with ID/DD and their families. More than 5,287 family respondents
participated in the survey; of these, three-quarters shared their home
with a person with ID/DD. Overall, 95 percent of respondents were
parents, siblings, children, grandparents or other relatives of a person