From Babble's blogger Jocelyn Gray. Don't forget to sign the petition after reading this post.
POTTSVILLE, Pa. -- Karen Corby’s husband died at age 27 of a stroke, due to an
undiagnosed heart condition. Now she is fighting for a heart transplant
for her 23-year-old son, who has the same condition.
Paul Corby has Left Ventricular Noncompaction, a rare, congenital
disorder in which part of the heart muscle appears spongy, or
“non-compacted.” The heart is less able to pump blood throughout the
body; Paul’s “ejection fraction” of blood through his heart is only 20
percent. Strokes and heart failure are common prognoses. Paul has had
three mini-strokes already.
Paul now takes 19 medications a day, most of which are to try to stabilize his heart. The only cure for LVN is transplant.
Paul doesn’t drink, or smoke. He is an otherwise healthy 23-year-old
man. And yet, he has been denied placement on the national heart
transplant list.
According to the Corbys, and according to a letter from Penn Medicine which they shared with me, Paul has been denied the placement in large part because he is autistic.
Showing posts with label Left Ventricular Noncompaction. Show all posts
Showing posts with label Left Ventricular Noncompaction. Show all posts
Wednesday, August 8, 2012
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