When Children Become Caregivers

Jordan wakes at 6 a.m. She helps her mother, who is recovering from surgery for breast cancer, into the bath. Jordan has it all timed. She gulps down breakfast as her mother bathes, and returns to help her out of the tub. "I'll make sure her bandages are clean and didn't get too wet," Jordan says. "And if they did get too wet, I change them."

Her mother is disabled from painful fibromyalgia, so Jordan takes her to her room, where her mother can dress herself. That gives Jordan a chance to get ready for school and walk the dog before her mother, slowly moving into the car, drives her to school.In the evening, Jordan, who asked to be identified by first name only, tends to the family's animals. She helps her mother into bed and wraps a thermal blanket around her. Finally, she has a chance to eat dinner, do homework and wind down before going to sleep. Bedtime can be past midnight for the Florida ninth-grader. It's a long day for a 14-year-old.
About 1.4 million children between ages 8 and 18 are caregivers nationwide, according to the American Association of Caregiving Youth. Evenly divided between girls and boys, about a third are between 8 and 11, and nearly 40 percent are between 12 and 15. Most often, the family member is a parent or grandparent, with a condition such as Alzheimer's disease or dementia; heart, lung or kidney disease; arthritis or diabetes.

Aging Parents Fear Future for Their Adult Children with Disabilities

KING FERRY, N.Y. -- Helen and Mike Littlejohn had three biological sons and one on the way when they decided they had it in them to adopt some hard-to-place children.

Isaac Littlejohn is one of 12 children.

Along came two girls with psychological disabilities. Next, a daughter with shaken baby syndrome.

Once their house was outfitted for a wheelchair, they adopted Isaac, an 11-year-old who could not walk or talk but laughed and played.

His two brothers, who had been eating lead paint, needed homes too.

"We said, well, we have to have them all together," Helen Littlejohn said.

Finally, the couple offered homes to two children who had been sexually abused.

That made them parents of 12 children - three with severe developmental disabilities.
"Our hearts were bigger than our logic," she said. "We went ahead and did it and thus started our future."

Funding Challenges Familes with Adult Children

Neil Stevenson and his son, Niles,
at home.

GEORGETOWN, Del. -- Neil Stevenson's son is 33 years old, yet he still lives at home. That's because he has nowhere else to go.
Stevenson calls his son, Niles, a "forever child." He's intellectually disabled, but because of a seizure condition, it's hard to find adequate medical services to supervise him. And Niles doesn't qualify for group housing -- that is, unless Stevenson and his wife either abandon him or die.